Model
Digital Document
Publisher
Florida Atlantic University
Description
Although Black women appear to be more at risk for HIV/AIDS than other
women in the U.S., there is little information from positive Black women about positive
Black women's prevention perspectives, the failure of the prevention models, and their
perspectives on effective prevention measures. Black women with HIV/AIDS are
configured primarily as victims, poor, sexually deviant, or inferior moms who pass
disease to their children. Research helps to reinforce these misconceptions by primarily
examining HIV related behaviors outside of a race, class, and gendered framework. Since
the perspective of HIV positive Black women are not addressed comprehensively in the
design of prevention programs, the eradication of HIV among African American women
has not been effective.
This research investigates positive Black women's perspectives and concerns on
effective HIV prevention informed by their lived experience and situated knowledge.
Theories of intersectionality of race, class, gender and stigma, and reciprocal
empowerment inform this study. Study results reveal that the threat of being associated
with factors of HIV/AIDS intersectional stigma can cut off African American women
from their survival systems that help them subvert oppression. Factors that create and
maintain these systems are experiences of communal connections, familial relations, and social respect; and are privileged in the HIV prevention decision making process of study
participants. Most HIV education, care, and treatment is obtained in public institutions,
thus many women are hesitant to seek assistance. Consequently, intersectional stigmas
obstruct HIV/AIDS prevention, care, and treatment for African American women. I
reframe HIV/AIDS in order to subvert the stigma and discrimination associated with the
virus that leaves many Black women cut off from their base.
Methodologically, the study is qualitative and situated within Black women's
narrative analysis for the systematic examination of individual experience and meaning. I
utilize in-depth interviews, participant observation, and some additional ethnographic
data. The fieldwork was carried out over several months with the Comprehensive Family
AIDS Program in Florida. Thirty in-depth interviews were conducted with HIV positive
African American women interviewing them on their position of what constitutes
relevant and applicable HIV/AIDS prevention.
women in the U.S., there is little information from positive Black women about positive
Black women's prevention perspectives, the failure of the prevention models, and their
perspectives on effective prevention measures. Black women with HIV/AIDS are
configured primarily as victims, poor, sexually deviant, or inferior moms who pass
disease to their children. Research helps to reinforce these misconceptions by primarily
examining HIV related behaviors outside of a race, class, and gendered framework. Since
the perspective of HIV positive Black women are not addressed comprehensively in the
design of prevention programs, the eradication of HIV among African American women
has not been effective.
This research investigates positive Black women's perspectives and concerns on
effective HIV prevention informed by their lived experience and situated knowledge.
Theories of intersectionality of race, class, gender and stigma, and reciprocal
empowerment inform this study. Study results reveal that the threat of being associated
with factors of HIV/AIDS intersectional stigma can cut off African American women
from their survival systems that help them subvert oppression. Factors that create and
maintain these systems are experiences of communal connections, familial relations, and social respect; and are privileged in the HIV prevention decision making process of study
participants. Most HIV education, care, and treatment is obtained in public institutions,
thus many women are hesitant to seek assistance. Consequently, intersectional stigmas
obstruct HIV/AIDS prevention, care, and treatment for African American women. I
reframe HIV/AIDS in order to subvert the stigma and discrimination associated with the
virus that leaves many Black women cut off from their base.
Methodologically, the study is qualitative and situated within Black women's
narrative analysis for the systematic examination of individual experience and meaning. I
utilize in-depth interviews, participant observation, and some additional ethnographic
data. The fieldwork was carried out over several months with the Comprehensive Family
AIDS Program in Florida. Thirty in-depth interviews were conducted with HIV positive
African American women interviewing them on their position of what constitutes
relevant and applicable HIV/AIDS prevention.
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